Wednesday, May 25, 2011

What It's Like to Have Charcot Tooth Muscular Dystrophy

It's a hard journey for me. There are things
that I've always wanted to do but couldn't, because
of my CMT. I always wanted to be a cheerleader, 
my whole life! It's all I thought 'bout in school. Watching all the cheerleader cheer was
sad but yet fun. I just wished I could be a part
of that, part of a team and the friends
that cheerleaders have! I'm glad for the friends I
do have, though! I also wanted to run, like, in races.
I loved the feeling of my hair flowing back and when you
run, you can go anywhere! I feel like I'm going no where, sometimes.
I mean, I have my family and friends by my side
but it just feels like I should be doing more i life. It feels like
I'm not doing everything im supposed to do i
Stephanie Wilcox: (I'd love to get married and have kids one day). I wish I could do so much more! It's hard to
walk somtimes! And I fall a lot!!! I've  broken both
legs, all my toes and both feet! It's an awful pain and when I 
fall I just want to give up! Because, I can always fall again and
again! But, I always get back up! My Dad and Mom
always told me never to give up! 

3 comments:

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