What It's Like to Have Charcot Tooth Muscular Dystrophy

It's a hard journey for me. There are things
that I've always wanted to do but couldn't, because
of my CMT. I always wanted to be a cheerleader, 
my whole life! It's all I thought 'bout in school. Watching all the cheerleader cheer was
sad but yet fun. I just wished I could be a part
of that, part of a team and the friends
that cheerleaders have! I'm glad for the friends I
do have, though! I also wanted to run, like, in races.
I loved the feeling of my hair flowing back and when you
run, you can go anywhere! I feel like I'm going no where, sometimes.
I mean, I have my family and friends by my side
but it just feels like I should be doing more i life. It feels like
I'm not doing everything im supposed to do i
Stephanie Wilcox: (I'd love to get married and have kids one day). I wish I could do so much more! It's hard to
walk somtimes! And I fall a lot!!! I've  broken both
legs, all my toes and both feet! It's an awful pain and when I 
fall I just want to give up! Because, I can always fall again and
again! But, I always get back up! My Dad and Mom
always told me never to give up! 

Here comes Summer!!!!

HOT... HOT... HOT! love summer, just wish
it wouldnt be quite so hot. But, it's time for
swimming my family's fave (among other
things) thing to do. Summer is time for
outdoor fun, my little Teddy Bear loves
to be outside. Our other fave thing to do
in the summer is to go to Six Flags, it's
lots of fun! They have so many fun
things to do. One of my fave things to do
is the dolphin shows, they are the cutest
things ever! And they do all kinds of
tricks and jumps. The other thing we
like,  are
the rides they are so much fun! I mean, I
can't get on all of them, but, some of
them I can. And we always have lots of
fun when we go there. My favorite ride is the log flum ride ( sp? I am not always a good speller, anyway)! I love the feeling
(as Stephanie Wilcox: I love the feeling
as long as we dont fall out) of going
down the big hill! Geting wet is
also one of the best parts (especially because of my MD, I can't get into a pool so good) unless it's
cold out, then not so much! LOL. Also, they
have a Wild Safari and my little Teddy
Bear (my nephew) loves to see the animals and watch
them come up to the car. When I was younger
the monkeys would jump on cars! It was
awesome to see them up close, but now they don't do that anymore. Since, I think, the
monkeys were damaging some cars. The
other thing we like are the giraffes. They
are cute, too!

My First Ever Post!

                                                        Reading Phillies 

My family and I love the Reading Phillies games. We went to one on sunday. My mother is in love with the games so we go a LOT! But, there is always something fun to do there! We always have tons of fun. And my nephew (who I will call Teddy Bear in all my posts) loves the slide and all the fun activities when we were out geting drinks we saw the some mascots going down the side it was funny cause they got stuck at the bottom heres a pic   

here they are then they got off say yah we made it

lol

we will b bac soon :)